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DesertBerean
02-24-2014, 07:11 PM
http://www.boston.com/news/local/massachusetts/2014/02/24/parents-justina-pelletier-upset-after-learning-teenager-will-now-sent-dcf-foster-care-advocates-say/r6TKrvmVGf2lxmHgQKZC6O/story.html

I've seen this story come up in the news. I'm puzzled not about the amazingly obtuse justice system but about the apparent reluctance of the hospital to cooperate in treating this child for a supposedly rare treatment. I've seen some suggestions that Obama care is to blame but this all started over a year ago so I don't see how that's relevant.

Anybody have any insight? Is this really a big cover up by the hospital because they failed to treat the the child properly in the beginning? Or is the disease non existent as some seem to imply?

Outis
02-24-2014, 07:31 PM
In short, the doctors at the Boston hospital decided that this was not a mitochondrial disease, but a case of "medical child abuse." Seems to have far more to do with the egos of the doctors involved than anything else.

DesertBerean
02-24-2014, 08:04 PM
True. .. I hadn't thought it might be an ego problem. I suppose somebody's nerve could have been touched when told to call the physician who had been i. Charge of the girl's treatment. I have to admit that this disease of the mitochondria stuff has me scratching my head. This is the power plant of the body, right? I would have thought that any problem affecting this primary source of energy would've been easy to see but apparently the symptoms are non specific and... what, normal genetic tests wouldn't show anything?

*thinks a trip to a medical library might be in order>

Outis
02-24-2014, 08:10 PM
normal genetic tests wouldn't show anything?

Not to the best of my understanding, because the mitochondria have their own DNA.

JimL
02-24-2014, 08:34 PM
http://www.boston.com/news/local/massachusetts/2014/02/24/parents-justina-pelletier-upset-after-learning-teenager-will-now-sent-dcf-foster-care-advocates-say/r6TKrvmVGf2lxmHgQKZC6O/story.html

I've seen this story come up in the news. I'm puzzled not about the amazingly obtuse justice system but about the apparent reluctance of the hospital to cooperate in treating this child for a supposedly rare treatment. I've seen some suggestions that Obama care is to blame but this all started over a year ago so I don't see how that's relevant.

Anybody have any insight? Is this really a big cover up by the hospital because they failed to treat the the child properly in the beginning? Or is the disease non existent as some seem to imply?

Justina was previouly admitted to several hospitals and treated for what was believed to be a rare disease with no success and then was admitted to Childrens hospital in Boston where it was determined that she had been misdiagnosed and was re-diagnosed with what is called somatoform disorder, which is psycho-somatic rather than medical in nature and is said to be somehow brought on by attention seeking parents. Childrens Hospital is trying to protect the child from all of the unnecessary medical treatment and surgery's she's been, in their view, unecessarily undergoing. Knowing what i do of the family, i agree with the hospital, but can't say more.

Outis
02-24-2014, 08:55 PM
Justina was previouly admitted to several hospitals and treated for what was believed to be a rare disease with no success and then was admitted to Childrens hospital in Boston where it was determined that she had been misdiagnosed and was re-diagnosed with what is called somatoform disorder, which is psycho-somatic rather than medical in nature and is said to be somehow brought on by attention seeking parents. Childrens Hospital is trying to protect the child from all of the unnecessary medical treatment and surgery's she's been, in their view, unecessarily undergoing. Knowing what i do of the family, i agree with the hospital, but can't say more.

Do you know (from public information, stuff that can be spoken of without violating privacy) if there have been tests to identify or rule out a mitochondrial disease?

JimL
02-24-2014, 10:21 PM
Do you know (from public information, stuff that can be spoken of without violating privacy) if there have been tests to identify or rule out a mitochondrial disease?
I can't say for certain, though Childrens Hospital in Boston is one of the most respected hospitals in the country. Mitochondrial disease is very difficult to diagnose and sometimes requires many different tests, but I would be willing to bet that Childrens did a very thorough examination the result of which the parents were obviously not happy with, of course. I've seen the relationship between the parents and the child though and there is definitely something wierd psychologically going on there. Justina is 16 years old and acts her age until she meets with her parents wherin she immediately reverts to acting like a 5 year old. And from what i've seen the parents are definitely attention seekers.

DesertBerean
02-24-2014, 10:34 PM
Hmmmm....JimL, how did you come to observe those interactions? :huh:

DesertBerean
02-24-2014, 11:19 PM
Here's something I found from the Boston Globe. I don't know if this paper is highly regarded but it's interesting reading...Part One at least. Haven't read part two yet...

http://www.bostonglobe.com/metro/2013/12/15/justina/vnwzbbNdiodSD7WDTh6xZI/story.html

DesertBerean
02-25-2014, 08:04 AM
Some myths and facts about mito diseases:

http://my.clevelandclinic.org/disorders/mitochondrial_disease/hic_myths_and_facts_about_mitochondrial_diseases.a spx

Catholicity
02-25-2014, 09:22 AM
There is one reality. If a team of Physicians at a teaching hospital decides something, they will go to great lengths to prove it. I have seen this myself. Unfortunately, and this is a reality, when it comes to children, if a parent goes AMA, regardless of what another physician says, and they will utilize their "authority" to attempt to override the parents, including court.

DesertBerean
02-28-2014, 03:51 PM
http://foxct.com/2014/02/28/mass-officials-say-justina-pelletiers-care-being-transferred-to-tufts/

So she'll be transferred back to Tufts...and eventually go home. I think somebody is washing hands of this.

JimL
02-28-2014, 08:16 PM
http://foxct.com/2014/02/28/mass-officials-say-justina-pelletiers-care-being-transferred-to-tufts/

So she'll be transferred back to Tufts...and eventually go home. I think somebody is washing hands of this.
I don't think so. Whether she will be treated at Tufts or not i can't say, but what DCF is saying is that they would like to get her into a facility, away from her parents, but closer to them in Conneticutt where she lives. That being the case, it doesn't really make sense that she would be treated at Tufts for mitochondrial disease. If they believed it was mitochondrial disease and not child medical abuse then she would be going home to her parents, not to a facility. I think that they are just trying to work out a solution that would perhaps make things easier for the whole family, but they are not changing the psychiatric diagnoses or relinquishing custody back to the parents.

DesertBerean
06-17-2014, 03:57 PM
UPDATE: http://www.personhoodusa.com/press-release/breaking-justina-pelletier-to-be-released-to-her-family-wednesday/

Justina is going home.

Catholicity
06-17-2014, 07:08 PM
Good! She should have never been taken from her parents in the 1st place.

Teallaura
06-17-2014, 07:27 PM
:woohoo:

DesertBerean
06-18-2014, 09:38 PM
Here is what appears to be a good summary of the issues around her case:

http://www.bostonglobe.com/metro/2014/06/18/when-politics-and-protection-collide-the-case-justina-pelletier/AIEm0BmUXsDWT4PJADBcLI/story.html

Catholicity
06-19-2014, 12:54 PM
So basically they stuck her in the middle of an experimental idea that stems from a parental diagnosis of munchausen's by proxy. The problem here is that munchausen's by proxy which result's in child abuse is pretty severe and the diagnosis of the parents comes only by psychological evaluation and cases like Justina's simply are unheard of in this. Essentially they were accusing the parents of faking things to get attention when they had NO evidence to do it. Dang Freaky liberal blankety blankety blankety (there aren't enough words that are vulgar enough for me to express how angry I get as a mom myself to think of one of my children being made an experiment in a state game)

Cerebrum123
06-19-2014, 01:02 PM
Good! She should have never been taken from her parents in the 1st place.

:yes:
With what I went through with RSD(and often times just being sick with other stuff), I'm a bit surprised that we didn't have more trouble with this kind of thing. Especially after one doctor claimed to have "cured" me with a full lumbar sypmathectomy*.

*Worst thing I could have possibly had done. It only made everything worse, and was a lot harder to recover from than I was led to believe.