Quote Originally posted by The Experience of Families With Children With Trisomy 13 and 18 in Social Networks
Thirty percent of parents requested “full” intervention as a plan of treatment. Seventy-nine of these children with full T13-18 are still living, with a median age of 4 years. Half reported that taking care of a disabled child is/was harder than they expected. Despite their severe disabilities, 97% of parents described their child as a happy child. Parents reported these children enriched their family and their couple irrespective of the length of their lives.
http://pediatrics.aappublications.or...abstract?rss=1


One of the families is to be featured this week here:
http://www.facinglife.tv/